Dystonia Support Group - Alabama    
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Research and Fundraising

University of Alabama Names First Dystonia Scholars

University of Alabama students John Ricketts and Emily Kay Woods, both from Birmingham, have been named the first Alabama Dystonia Scholars.

Ricketts and Woods work with Drs. Guy and Kim Caldwell in UA’s biological sciences department. They have been awarded a $20,000 research scholarship that will allow them to conduct extensive research on Dystonia, a neurological movement disorder, for the summers of 2008 and 2009.

Click here to read the entire press release


Dr. Mark LeDoux visited our Support Group in February 2006.  Many of us chose to participate in a Research Study he is directing regarding genetic markers for Dystonia.


Clinical Trials are continuously being conducted for new treatment options and ways to find find the cause of Dystonia. 

The links here will take you to information regarding those trials:

Clinical Trials: Dystonia - National Institutes of Health

Clinical Trials: Cervical Dystonia - National Institutes of Health


Grants and Funding for Research


Fundraising

Raising funds for research is a necessary task if we are to find a cure and better treatments for Dystonia.

Click here for a sample letter you can send to family and friends to help raise awareness and funds for Dystonia research. 

Click here to read How Far Will $500 in Donations to DSG-Alabama Go?

Please send donations to:

Dystonia Support Group - Alabama Chapter
c/o Office of the Treasurer
2 Office Park Circle, Suite 1
Birmingham, AL 35223

If you would like it to go to the DMRF, please mark your donation accordingly.

Our Support Group here in Alabama has many expenses as well, and your generosity is appreciated.  If you would like your donation to be used for our work here in Alabama, please mark your donation accordingly.


CHECK THIS OUT!  2008 NUMBERS!

2008 Financial Highlights

During 2008, DSG-Alabama raised $25,000+!  We distributed the following amounts:

    To DMRF for medical research - $13,000
    To University of Alabama for Dystonia Scholars - $10,000
    For awareness activities - $1300
    The remainder was spent for group expenses

    Click here to view the 2008 Annual Report

2007 Financial Highlights

          DSG-Alabama raised $17,446!  We distributed the following amounts:

To DMRF and other for medical research - $12,050
For awareness activities - $4,200

2006 Financial Highlights

$29,490 for Medical Research

over $4,500 on AWARENESS projects; i.e. Health Fair Booth, Library Bookmark projects, Awareness Week activities, Doctors Awareness Kits, and this website

 

Much of our Awareness expenditures were materially reduced with "gifts-in-kind"; i.e. printers discounting bills, Staples discounting supplies, Web Site designer donating her services, companies donating postage, and other generous donations of time and talents.

 

 

 

 

 The information contained in this site is for education and information purposes only.  DSG - Alabama does not endorse or recommend in any way the information contained in this website.  Links are provided for convenience.  DSG-Alabama does not maintain links outside of this website. 

Copyright 2007-2009, Dystonia Support Group (DSG)- Alabama.  Trisha Crain, Webmaster.